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| At least with a death sentence you know your misery will come to an end at a definite time.... With tinnitus you just live in misery for what could still be a long life. I think id prefer a death sentence. | | 02 Jan 2010 01:40 |
| I sometimes feel tinnitus is a death sentence - just a morbidly long and terrifying one, so I know what you're saying buddy. For people like us we must keep hoping we'll habituate. Hang in there. | | 02 Jan 2010 09:09 |
| If i once again compiled a list of the illnesses that possess my body, imight just mention somewhere near the end, "oh, and i have very loud tinnitus as well". For me its a matter putting things in perspective. Only 3 years ago i was still well into athletic persuits. Sure, this 't' can be h-e-l-l, your worst nighmare, but it is how you percieve it, its a shock, for sure, to your mind, "why me", where can i get help, why isn't there any, how much, who can i trust, its a veritable minefield of confusion, anxiety etc.., that all just fuel this little prob. You have to hang on in there, for me thats what a big chunk of what lifes all about, took me over a year, but i was a slow learner, you will backstage this sound, i live with it blasting away all day, but i've moved on from the feeling of hopelessness, the depression, why carry on, my brain got bored with that lot too, as well as the 't' | barry | 02 Jan 2010 10:40 |
I used to think that, but I gradually realised that the day I stopped believing tinnitus had turned my life into a miserable nightmare was the day I re-started my life. Change what you believe about the tinnitus and you will amaze yourself at how much faster you will habituate.
It is without a doubt possible to enjoy a life with intrusive tinnitus. I'm more than half way through my life but tinnitus has given me a more positive, more caring and more accepting attitude. Up there with child birth it was one of the most challenging things I've dealt with. It is still there, but it does not bother me any more.
The human mind is stronger than you imagine, you will adapt and overcome and move on with your life. As with all life experiences, take something good from it, use it to help others, and amaze yourself.
I would urge you to look forward into the New Year, the more you think out and beyond yourself, the easier it is to fullfill whatever life has in store. Do not live your life in fear of tinnitus, it cannot hurt you.
Happy New Year
Louise x | Louise | 02 Jan 2010 13:06 |
sheeesh.
the fact that you are on here posting things like that tells me the tinnitus is obviously bothering you a great deal and I totally understand that. But posting thing such as this does absolutley nothing for you of your tinnitus or anyone elses for that matter. All it does is make you and others react to their tinnitus in a negative way and starts a vicious cycle all over again.
Take a break from message boards for a while and get some rest and ease your mind. These hypothetical scenerios do no good. | dan | 02 Jan 2010 15:35 |
| When I first had it, two months ago, I would ask myself similar questions. Would you rather have cancer or T? Well the answer was, I would rather have T. Or, would I rather have terrible stomach pains for the rest of my life, or T? That was a harder one. You are not alone. These are typical reactions esp. at the onset of the this boringly terrible disorder. Then one day you decide not to give it any energy. | Philippa | 02 Jan 2010 15:50 |
| You seriously underestimate your ability to resolve problems and fears that arise in your life. You will find a incredible tenacity that will allow you to regain authority over your life. I promise you this will happen. It will take time. Time you have. | Liz | 02 Jan 2010 16:20 |
| Dan why don't you get off the forum for a while and ease your mind. If you don't like a thread there's nobody forcing you to click on it and post on it. Who made you the forum moderator? | | 02 Jan 2010 23:00 |
1) A few months after I developed tinnitus, my uncle died of pancreas cancer after a long and 2+ year battle. When I was at his funeral, I was sleeping on my aunt's couch without fan / white noise and battling to go to sleep. Of course, one of my thought threads was whether my uncle would have traded tinnitus for his cancer. Frankly, I couldn't imagine a scenario where he wouldn't have.
2) Some months ago, when I was really struggling with my T, I came home to find that someone had broken into my home and taken some things. I called a friend in a bit of a panic. This friend has been very supportive as I came to grips with T, and he wisely said "Well, you're concerned about your safety, so that probably means you don't want to die."
...I definitely have days when I'm annoyed or frustrated and I long for silence, but I have stretches of time where I forget about it and enjoy life. That's a vast difference from my perspective a year ago, despite the fact that my T isn't all that much quieter.
It WILL get better. | KiminHouston | 03 Jan 2010 06:02 |
| I would prefer tinnitus because we are in the year 2010 and a cure is within few years. | SUPERSTAR | 20 Feb 2010 22:53 |
My what kind of a stupid question is that. People live with lost limbs, paralysis, complete deafness, deafblindness......(you get my point).
Tinnitus is a hell of an annoyance, but its absolutely ridiculous to compare it to a death sentence, when there are many others out there cherishing every day with FAR WORSE problems than we have.
I suggest that if tinnitus is making you even think about death, your problem is no longer tinnitus, but a serious psychological problem that you should get help for.
Im not trying to sound harsh, or to diminish the annoyance that tinnitus causes.....but I think you will agree deep down that death is not the answer.
So no, tinnitus is in NO WAY comparable to a death sentence. I would say if you want to compare it to something, its the equivalant of having persistant toothache. | Sonny | 20 Feb 2010 23:46 |
I would like to retract the part about having a serious psychological problem.....that comment is in fact not helpful in any way.
How do you change your own posts? | Sonny | 20 Feb 2010 23:53 |
Sonny, It seriously annoys me when people talk to tinnitus sufferers (that are struggling with this) about other illnesses they could have and other peoples suffering...i find it totally irrelevant and cold hearted, (especially that you must have it yourself as u are on here posting) Tinnitus affects everyone differently and perhaps you are lucky not to be as bothered by it as some,..I had a perfect life before I got this and life came crahing down when it did arrive...
A persistent toothache???? Seriously what planet u on? cant they remove teeth these days and problem solved???? they cant remove tinnitus.. | ms 28 | 21 Feb 2010 00:53 |
| I do feel that T is some kind of sentence, but then you HAVE to reverse this feeling, to get on with your life. So it takes a massive amount of willpower, a change in your beliefs about life. Messages I give myself are: did anyone guarantee you a life without some kind of misery? Am I in pain due to T(no, thankfully). Will this end? (it has for many people) Is there something i can do about it (yes, craniosacral therapy helps, exercise, playing a musical instrument). Like any disability, this is a massive challenge on many levels. | Philippa | 21 Feb 2010 14:45 |
ms 28,
Ya, I do have it myself, which is why I post on here. I think it is totally relevant to put things into context. Its through the use of context and perspective that we begin to come to ease with the things that dont quite go right in our lives.
Theres nothing irrelevant and cold-hearted about it. Today I read a story on the news about a woman in my area who has been diagnosed with an unoperable brain tumor at 23. Before she dies she will be paralysed, blinded and possibly brain dead...............suddenly that noise in my ears seems a little less severe. | Sonny | 21 Feb 2010 18:28 |
| If someone offered me a painless way to die then I'd take it in an instant over living with this infernal ringing in my head for the rest of my life. | | 21 Feb 2010 22:13 |
I'd prefer cryogenic suspension (if it existed) to either of these options.
Keep me in some kind of limbo until a noise reducing medication appears or some other kind of treatment that lowers the racket to a more tolerable level.
But then - with my luck - I'd probably wake up to find that everyone else had turned into zombies or something. | Urusai | 22 Feb 2010 00:53 |
| we're all at different stages and ages with this 'thing', we also come from so many different backgrounds, our mental health may vary, we may be weak or strong, but its our perception of everything that enters our minds that makes the difference, and our acceptance combined with understanding. Its probably a 'death sentence' for me if i continually focus on it, allow myself to be aggitated, angerred, panicked, whatever, by it, but quiet, or loud, i generally ponder on it then go some place else in my mind that provides a lot more interest, it just takes time to settle again, after the initial onslaught of this 'thing', to stop thinking 'why me', and obsessing with it, to just let it go, you'll get there. We're all on a journey, just some of us pick up a few nuisances along the way. You'll learn to play it down, even joke about it, then realise you've learnt to master it, and maybe then many other problems that have been needling you. Don't give in to it, make it a challenge.If you consider it a death sentence now, then overcome it, imagine where you can go from there. It still problems me at times, but every day i wake it moves farther away from my thoughts. I'm far more relaxed now than i eve r was, long before i entertained tinnitus, | barry | 22 Feb 2010 13:16 |
I'd prefer the death sentence (provided it was a short one!)
Also I completely agree with ms 28's point over Sonny's. But I guess that that's a discussion for another thread. | S.D | 22 Feb 2010 14:46 |
| I am having a bad day today (no sleep). I have had t for 4 months now and this was the worst night of sleep. I read the posts for encouragement and even though the start of this thread is bad there are several of you who encourage me to hang on. It look forward to the time when I can post and say I have habituated. I also look forward to the cure. | SKI55 | 22 Feb 2010 15:52 |
| Or maybe Tinnitus and a DEAF Sentence at same, thats what I have 24/7 | pompeyfc | 22 Feb 2010 21:36 |
Its depressing, Its a
"££$%%** in the backside, strange thing is people saying about the constant ringing, I had soldiers marching when i was about 6, I had ringing when when i was about 10, then from then til late teens i had both, past few years my T has worsened, I still have soldiers marching, banging, gale force winds, brass bands, people talking, but only on odd occassions i have ringing..But hell I have everything else, yes I have plenty downers, But would not choose Death, Im Deaf with T in both ears,severe muscle spasms day and night and heck they are painful and bad ones leaves side of my face numb for couple weeks, but gotta try eh? live on | pompeyfc | 22 Feb 2010 21:46 |
| I respect you pompeyfc | | 23 Feb 2010 23:07 |
| Definitely DEATH. As long as it was quick, painless and ASAP! | | 26 Feb 2010 17:47 |
| To the person that started this thread and everyone that agrees... you are all idiots. | | 28 Feb 2010 16:28 |
| 'idiots', well now you sound a really positive, powerful minded person, what a pity you can't use some of that strength to help pull others out of the rut they find themselves in, with tinnitus, instead of just slagging them off | barry | 28 Feb 2010 17:49 |
This really is a very sad and unfortunate thread. I won't bore you with details, but I really would like you to read the message submitted by me under the heading Ed. I have had tinnitus for nearly 4 years and the story is in that message.
Please, under no circumstances, mention tinnitus in the same breath as death. Just don't. You WILL get used to it and as my Oncologist tells me, there are far more important things to distract you from this insidious condition, but, believe me, the more you think about it and focus on it the worse it gets. It mightn't be curable but it certainly is controllable. Believe me, I went through hell initially, but, after nearly 4 years, it has just become part of my life and I simply don't let it get to me. It just takes time. Be patient, but, please never despair. Ed. | | 01 Mar 2010 08:26 |
| I am still here,that must means I prefer T | thomas | 01 Mar 2010 10:50 |
You all keep saying that 'your brain will learn to live with T"
I've had t for 38 years, now have hyperacusis as well, I can't use telephones, can't go to the pub, resturants, cinema, I can't even bear to be in the same room as my two grand children,
My head noises and pain, dizzyness, sickness blured vission, keeps my a prisoner in my own home, afraid to go out to all that noise.
No help from Nhs at all, have to buy morphine on black Market to num the pain,from all the noise.
It someone told me that all the pain would also go If If I got rid of the last bit of hearing ive got, I'd be straight to it nitting needles in my ear drums. Being deaf, and able to walk out my front door, and have a life again, would be worth the pain, and atleast deafness is a recognised disability and finaly I might get some help.
Or is someone going to tell me if I wait another 38 years, my head will get use to all the noise and pain | Supernige | 09 Mar 2010 07:16 |
Shouldn't T be recognized as a disability? Esp., if it's very loud.
Respect, Pompey and to all of you who are suffering so much. | Philippa | 09 Mar 2010 15:03 |
I went to my sisters house warming party this weekend just been for her new home.
First time out socialising in 5 months since I got T from some antibiotics that screwed some of my hearing.I use to go out socialising all the time.
Well unfortunitely ototoxic can effectectively destory the bodies balance systems and with the combination of a few drinks when socialising its not so good.I broke three ribs from a fall onto a outdoors table at this house warming.
It hurts to breath , type and I wont even express in words how it feels to cough but the funny thing is that it bothers me less than my T.
I have been following and investigating all the research being done for a hearing cure and its that progress what makes me want to carry on.
Many types of T will be fixed when hearing loss is restored and the brain patterns normalise.Just wish they would hurry up. | Mr Microbiology | 09 Mar 2010 22:17 |
| So sorry to hear of this, Mr M. Broken ribs are very painful. I wonder if you could check the printed material that came with your antibiotics. Does it mention T as a side effect? My anti depressant, Sertralin (Zoloft) didn't, and am thinking this could be the basis of a class action suit. | Philippa | 10 Mar 2010 14:13 |
| I would trade in my both legs for an immediate tinnitus cure. The only thing that keeps me going is the highly possible cure within a decade or so and my dogs. | | 10 Mar 2010 14:27 |
Yes ,some side effects listed for the antibiotic I took include tinnitus but it is not generally considered ototoxic ,just in a small few ,lucky me.
For some medicines its a gamble, some people will have no bad effects and some will.For me now I dont take anything unless absolutely necessary ,including painkillers. | Mr Microbiology | 10 Mar 2010 22:26 |
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